Latest from the community
Association announcements, news from medicine and advocacy, and events in the VHL community.
SIRMIUM 21/7 – WHEN A RACE BECOMES SOMETHING MORE
“We run for the rare.” – This was the message that brought together around 800 runners and nearly 2,000 visitors in Sremska Mitrovica on August 8, 2026, for the first humanitarian night half marathon “SIRMIUM 21/7.”
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Every kilometer run brings new hope for someone's health.
Sremska Mitrovica is all set to host participants and guests of the First Charity Night Half Marathon on August 8.
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Support for People Living with Rare Diseases
A Unique Sports and Charity Event
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Over 400 Participants Sign Up for the First-Ever Sremska Mitrovica Half Marathon
The first charity night half marathon, "Sirmium 21/7," will take place in Sremska Mitrovica on August 8, 2026, starting at 8:00 PM.
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Author's Article
Ljiljana Alagić – How She Discovered Her Diagnosis, and Her Journey of Researching and Learning About VHL
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Night half marathon “Sirmium 21/7” — our association among the race partners
The night half marathon “Sirmium 21/7” takes place on 8 August in Sremska Mitrovica, starting at 8 p.m. Our association is one of the race partners — we invite you to run together, also for those who cannot.
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